The Mast Cell Disease Society 24th National Conference 2021
Format:10 videos + 1 pdf, size: 51.8 GB
Course Audience: hematologist, pathologist
24th-Conference-Program (PDF Format)
Day 1 (Video MP4 Format)
Day 2 (Video MP4 Format)
Day 3 (Video MP4 Format)
Day 4 (Video MP4 Format)
Day 5 (Video MP4 Format)
Day 6 (Video MP4 Format)
Day 7 (Video MP4 Format)
Day 8 (Video MP4 Format)
Panel 1 (Video MP4 Format)
Panel 2 (Video MP4 Format)
* Detail:
DAY 1 Wednesday, October 13, 9:00am-5:00pm ET
OPENING REMARKS
9:00am- 9:15am / Lauren Denton, MA, Valerie Slee, RN, BSN & Kate Haviland
WHAT IS MAST CELL DISEASE?
9:20am – 9:55am / Valerie Slee, RN, BSN
WHAT IS MAST CELL DISEASE Q&A
10:00am – 10:25am / Valerie Slee, RN, BSN and Susan Jennings, PhD
BONE MARROW BIOPSIES & PATHOLOGY IN PATIENTS WITH SYSTEMIC MASTOCYTOSIS
10:30am – 10:55am / Tracy George, MD
GASTROINTESTINAL BIOPSY PATHOLOGY IN PATIENTS WITH SYSTEMIC MASTOCYTOSIS: IS THE NUMBER OF MAST CELLS PER HIGH POWER FIELD DIAGNOSITIC?
11:00am – 11:25am / Jason L. Hornick, MD, PhD
INDOLENT SYSTEMIC MASTOCYTOSIS INCLUDING CURRENT TREATMENTS
11:30am – 11:55am / Matt Giannetti, MD
SYSTEMIC MASTOCYTOSIS Q&A
12:00pm-12:45pm / Tracy George, MD
PURE ADULT CUTANEOUS MASTOCYTOSIS
4:00pm- 4:25pm / Mariana Castells, MD, PhD
UPDATES IN PEDIATRIC CUTANEOUS AND SYSTEMIC MASTOCYTOSIS
2:00pm – 2:45pm / Melody Carter, MD
PEDIATRIC CUTANEOUS & SYSTEMIC MASTOCYTOSIS Q&A
3:00pm – 3:45pm / Melody Carter, MD
SUPPORT GROUP – PARENTS OF CHILDREN WITH MAST CELL DISEASE*
4:00pm – 6:00pm / Leaders: Valerie Slee and Celeste Finnerty
DAY 2 Thursday, October 14, 11:00am-3:30pm ET
TAPPING & GUIDED MEDITATION
11:00am – 11:20am / Jan Marie Smith
UPDATES EFFECTIVE TREATMENTS FOR MCAS
1:30pm – 1:55pm/ Mariana Castells, MD, PhD
BREAK 11:20AM – 12:00 PM
MYELOPROLIFERATIVE NEOPLASMS ASSOCIATED WITH SM (SM-AHN)
2:00pm – 2:25pm / Deepti Radia
TREATMENT OPTIONS FOR ADVANCED SYSTEMIC MASTOCYTOSIS
2:30pm – 2:55pm / Jason Gotlib, MD, MS
UPDATES IN STEM CELL TRANSPLANTS AS A TREATMENT OPTION FOR ADVANCED DISEASE
3:00pm – 3:25pm / Celalettin Ustun, MD
SUPPORT GROUP – NEWLY DIAGNOSED*
12:00pm – 1:00pm / Leader: Jan Hempstead
SUPPORT GROUP – ADULTS WITH MCAS*
7:00pm – 9:00pm / Leaders: Valerie Slee and Celeste Finnerty
DAY 3 Friday, October 15, 9:30am-4:00pm ET
BREATHING TECHNIQUES
9:30am – 9:45am / Jan Hempstead, RN
USES AND LIMITATIONS OF SERUM TRYPTASE LEVELS IN MAST CELL DISORDERS
10:00am – 10:25am / Larry Schwartz, MD, PhD
UPDATES IN THE USE OF URINARY MARKERS IN DIAGNOSING MAST CELL DISEASE
10:30am – 10:55am / Joseph Butterfield, MD
PERIOPERATIVE MANAGEMENT OF MAST CELL DISEASE, INCLUDING DRUG ALLERGIES
11:00am – 11:25am / Mariana Castells, MD, PhD
PREGNANCY IN MAST CELL DISEASE
11:30am – 11:55am/ Anna Kovalszki, MD
MAST CELL DISEASE Q&A WITH DR. CASTELLS
12:00pm – 12:45pm/ Mariana Castells, MD, PhD
BREAK 12:45PM-2:00PM
UPDATES IN VENOM ANAPHYLAXIS IN MAST CELL DISEASE (INCLUDING MCAS AND HAT)
2:00pm – 2:25pm / Patrizia Bonadonna, MD
SUPPORT GROUP – ADULTS WITH SM
6:00pm – 7:00pm / Leaders: Valerie Slee and Susan Jennings
SUPPORT GROUP – YOUNG ADULTS (20-32)
7:00pm – 8:00pm / Leaders: Courtney Rabb and Jacob Hall
DAY 4 & 5 Saturday, October 16 & Sunday, October 17
DRAW MATTIE THE MAST CELL
Sat. October 16th at 12:00pm – 12:15 pm
MCAS EXPERT PANEL DISCUSSION AND Q&A
Sat. October 16th at 1:45pm – 3:45pm Marla Barkoff, MD Mariana Castells, MD, PhD Anne Maitland, MD, PhD Olga Pozdnyakova, MD, PhD Anupama Ravi, MD
SUPPORT GROUPS PET LOVERS*
Sat. October 16th at 4:00pm – 5:00pm / Leaders: Valerie Slee and Jody Bachiman
HAT*
Sun. October 17th at 4:00pm – 6:00pm / Leader: Jan Hempstead
TEENS
Sun. October 17th at 7:00pm – 8:00pm /Leaders: Valerie Slee, Celeste Finnerty, and Janice Chiappone
MCAS EXPERT PANEL DISCUSSION AND Q&A
Sat. October 16th at 1:45pm – 3:45pm Marla Barkoff, MD Mariana Castells, MD, PhD Anne Maitland, MD, PhD Olga Pozdnyakova, MD, PhD Anupama Ravi, MD
COMORBID CONDITION PANEL: UNTANGLING MCAS, EDS/CONNECTIVE TISSUE DISORDERS, DYSAUTONOMIA, AND IMMUNODEFICIENCIES
Sun. Oct. 17th at 11:00am – 12:30pm
Anne Maitland, MD, PhD Clair Francomano, MD Sarah Glover, DO, AGAF Brent Goodman, MD Jonathan J. Lyons, MD Anne Maitland, MD, PhD Cyndya A. Shibao, MD, MSCI, FAHA
AGRESSIVE DISEASE – PANEL DISCUSSION AND Q&A
Sun. October 17th at 1:45pm – 3:45pm Jason Gotlib, MD, MS Mark Heaney, MD Deepti Radia Srdan Versovsek, MD
DAY 6 Monday, October 18, 10:00am-4:30pm ET
UPDATE ON HAT AND RELATIONSHIP TO MAST CELL DISEASE
10:00am – 10:25am / Jonathan Lyons, MD
MCAS AND EDS – HYPERMOBILITY SPECTRUM DISORDER
10:30am – 10:55am / Clair Francomano, MD
RELATIONSHIP BETWEEN MCAS AND DYSAUTONOMIA
11:00am – 11:25am / Brent Goodman, MD
BREAK 12:00PM-1:30PM
HYPERADRENERGIC POTS IN MCAS
11:30am – 11:55am / Cyndya Shibao, MD, MSCI, FAHA
HEREDITARY ALPHA TRYPTASEMIA
1:30pm – 1:55pm / Sarah Glover, DO, AGAF
BONE MARROW BIOPSIES IN PATIENTS WITH MCAS
3:00pm – 3:25pm / Olga Pozdnyakova, MD, PhD
SUPPORT GROUP – MEN’S*
7:00pm – 8:00pm / Leader: Jacob Hall
MCAS AND IMMUNODEFICIENCIES
3:30pm – 3:55pm / Anne Maitland, MD, PhD
MANAGEMENT OF MCAS AND ENDOCRINE DISORDERS
4:00pm – 4:25pm
DAY 7 Tuesday, October 19, 10:00am-6:00pm ET
CONTROLLING GASTROINTESTINAL SYMPTOMS IN MAST CELL DISEASE
10:00am – 10:25am / Matthew Hamilton, MD
TREATMENT FOR OSTEOPENIA AND OSTEOPOROSIS IN MASTOCYTOSIS & MCAS
10:25am – 10:55am / Giovanni Orsolini, MD
BREAK 12:00PM-1:00PM
LONG COVID
1:00pm – 1:25pm / Theoharis Theoharides, MD, PhD
SUPPORT GROUP – CAREGIVERS*
5:00pm – 6:00pm / Brian Hempstead
COVID-19 IN PATIENTS WITH MAST CELL DISEASE
11:30am – 11:55am / Mariana Castells, MD, PhD
AMERICAN INITIATIVES IN MAST CELL DISEASES (AIM) & TMS BOARD MEETING – CLOSED SESSION
2:00pm – 2:30pm
IDENTIFYING NOVEL TARGETS TO INHIBIT MAST CELLS
2:30pm- 2:55pm / Mark Siracusa, PhD
ADVANCES MAST CELL BIOLOGY THROUGH SINGLE- CELL RNA SEQUENCING
3:00pm- 3:25pm / Daniel Dwyer, PhD
INTRO TO CLINICAL TRIALS AND UPDATES IN MASTOCYTOSIS
3:30pm- 4:15pm / Lauren Denton, MA, Blueprint Medicines & Cogent
DAY 8 Wednesday, October 20, 9am-8:30pm ET
HOW MAST CELL MEDIATORS CAN CAUSE ANXIETY, DEPRESSION AND BRAIN FOG AND OPTIONS FOR TREATMENT
10:00am – 10:25am / Theoharis Theoharides, MD, PhD
DYNAMIC NEURAL RETRAINING SYSTEM (DNRS): AN EFFECTIVE TOOL TO TREAT MAST CELL ACTIVATION
10:30am – 10:55am / Judy Tsafrir, MD
BREAK 11:30AM-1:00PM
MANAGING NUTRITION WITH MAST CELL DISEASE
11:00am – 11:25am / Bonnie Nasar, RDN
HOW TO TALK TO YOUR PHYSICIAN
1:00pm – 1:25pm / Valerie Slee, RN, BSN
THE POWER OF PATIENT ADVOCACY
1:30pm – 1:55pm / Shannon von Feldon, EveryLife Foundation
ANAPHYLAXIS – WHEN AND HOW TO TREAT
2:00pm- 2:30pm / Julie Wang, MD
ANAPHYLAXIS Q&A
3:00pm- 4:00pm / Matt Giannetti, MD
APPLYING FOR SOCIAL SECURITY DISABILITY
4:00pm- 4:45pm / Elevate Disability
BLUEPRINT MEDICINES COMMITEMENT TO COMMUNITY
5:00pm- 5:25pm / Dave Dubinski & Paul Lim
BREAK 5:30PM-8:00PM
CLOSING CEREMONY
8:00pm – 8:30pm