The Mast Cell Disease Society 24th National Conference 2021

The Mast Cell Disease Society 24th National Conference 2021

Format:10 videos + 1 pdf, size: 51.8 GB

Course Audience: hematologist, pathologist

24th-Conference-Program (PDF Format)

Day 1 (Video MP4 Format)

Day 2 (Video MP4 Format)

Day 3 (Video MP4 Format)

Day 4 (Video MP4 Format)

Day 5 (Video MP4 Format)

Day 6 (Video MP4 Format)

Day 7 (Video MP4 Format)

Day 8 (Video MP4 Format)

Panel 1 (Video MP4 Format)

Panel 2 (Video MP4 Format)

 

 

* Detail:

DAY 1 Wednesday, October 13, 9:00am-5:00pm ET

OPENING REMARKS

9:00am- 9:15am / Lauren Denton, MA, Valerie Slee, RN, BSN & Kate Haviland

WHAT IS MAST CELL DISEASE?

9:20am – 9:55am / Valerie Slee, RN, BSN

WHAT IS MAST CELL DISEASE Q&A

10:00am – 10:25am / Valerie Slee, RN, BSN and Susan Jennings, PhD

BONE MARROW BIOPSIES & PATHOLOGY IN PATIENTS WITH SYSTEMIC MASTOCYTOSIS

10:30am – 10:55am / Tracy George, MD

GASTROINTESTINAL BIOPSY PATHOLOGY IN PATIENTS WITH SYSTEMIC MASTOCYTOSIS: IS THE NUMBER OF MAST CELLS PER HIGH POWER FIELD DIAGNOSITIC?

11:00am – 11:25am / Jason L. Hornick, MD, PhD

INDOLENT SYSTEMIC MASTOCYTOSIS INCLUDING CURRENT TREATMENTS

11:30am – 11:55am / Matt Giannetti, MD

SYSTEMIC MASTOCYTOSIS Q&A

12:00pm-12:45pm / Tracy George, MD

PURE ADULT CUTANEOUS MASTOCYTOSIS

4:00pm- 4:25pm / Mariana Castells, MD, PhD

UPDATES IN PEDIATRIC CUTANEOUS AND SYSTEMIC MASTOCYTOSIS

2:00pm – 2:45pm / Melody Carter, MD

PEDIATRIC CUTANEOUS & SYSTEMIC MASTOCYTOSIS Q&A

3:00pm – 3:45pm / Melody Carter, MD

SUPPORT GROUP – PARENTS OF CHILDREN WITH MAST CELL DISEASE*

4:00pm – 6:00pm / Leaders: Valerie Slee and Celeste Finnerty

DAY 2 Thursday, October 14, 11:00am-3:30pm ET

TAPPING & GUIDED MEDITATION

11:00am – 11:20am / Jan Marie Smith

UPDATES EFFECTIVE TREATMENTS FOR MCAS

1:30pm – 1:55pm/ Mariana Castells, MD, PhD

BREAK 11:20AM – 12:00 PM

MYELOPROLIFERATIVE NEOPLASMS ASSOCIATED WITH SM (SM-AHN)

2:00pm – 2:25pm / Deepti Radia

TREATMENT OPTIONS FOR ADVANCED SYSTEMIC MASTOCYTOSIS

2:30pm – 2:55pm / Jason Gotlib, MD, MS

UPDATES IN STEM CELL TRANSPLANTS AS A TREATMENT OPTION FOR ADVANCED DISEASE

3:00pm – 3:25pm / Celalettin Ustun, MD

SUPPORT GROUP – NEWLY DIAGNOSED*

12:00pm – 1:00pm / Leader: Jan Hempstead

SUPPORT GROUP – ADULTS WITH MCAS*

7:00pm – 9:00pm / Leaders: Valerie Slee and Celeste Finnerty

DAY 3 Friday, October 15, 9:30am-4:00pm ET

BREATHING TECHNIQUES

9:30am – 9:45am / Jan Hempstead, RN

USES AND LIMITATIONS OF SERUM TRYPTASE LEVELS IN MAST CELL DISORDERS

10:00am – 10:25am / Larry Schwartz, MD, PhD

UPDATES IN THE USE OF URINARY MARKERS IN DIAGNOSING MAST CELL DISEASE

10:30am – 10:55am / Joseph Butterfield, MD

PERIOPERATIVE MANAGEMENT OF MAST CELL DISEASE, INCLUDING DRUG ALLERGIES

11:00am – 11:25am / Mariana Castells, MD, PhD

PREGNANCY IN MAST CELL DISEASE

11:30am – 11:55am/ Anna Kovalszki, MD

MAST CELL DISEASE Q&A WITH DR. CASTELLS

12:00pm – 12:45pm/ Mariana Castells, MD, PhD

BREAK 12:45PM-2:00PM

UPDATES IN VENOM ANAPHYLAXIS IN MAST CELL DISEASE (INCLUDING MCAS AND HAT)

2:00pm – 2:25pm / Patrizia Bonadonna, MD

SUPPORT GROUP – ADULTS WITH SM

6:00pm – 7:00pm / Leaders: Valerie Slee and Susan Jennings

SUPPORT GROUP – YOUNG ADULTS (20-32)

7:00pm – 8:00pm / Leaders: Courtney Rabb and Jacob Hall

DAY 4 & 5 Saturday, October 16 & Sunday, October 17

DRAW MATTIE THE MAST CELL

Sat. October 16th at 12:00pm – 12:15 pm

MCAS EXPERT PANEL DISCUSSION AND Q&A

Sat. October 16th at 1:45pm – 3:45pm Marla Barkoff, MD Mariana Castells, MD, PhD Anne Maitland, MD, PhD Olga Pozdnyakova, MD, PhD Anupama Ravi, MD

SUPPORT GROUPS PET LOVERS*

Sat. October 16th at 4:00pm – 5:00pm / Leaders: Valerie Slee and Jody Bachiman

HAT*

Sun. October 17th at 4:00pm – 6:00pm / Leader: Jan Hempstead

TEENS

Sun. October 17th at 7:00pm – 8:00pm /Leaders: Valerie Slee, Celeste Finnerty, and Janice Chiappone

MCAS EXPERT PANEL DISCUSSION AND Q&A

Sat. October 16th at 1:45pm – 3:45pm Marla Barkoff, MD Mariana Castells, MD, PhD Anne Maitland, MD, PhD Olga Pozdnyakova, MD, PhD Anupama Ravi, MD

COMORBID CONDITION PANEL: UNTANGLING MCAS, EDS/CONNECTIVE TISSUE DISORDERS, DYSAUTONOMIA, AND IMMUNODEFICIENCIES

Sun. Oct. 17th at 11:00am – 12:30pm

Anne Maitland, MD, PhD Clair Francomano, MD Sarah Glover, DO, AGAF Brent Goodman, MD Jonathan J. Lyons, MD Anne Maitland, MD, PhD Cyndya A. Shibao, MD, MSCI, FAHA

AGRESSIVE DISEASE – PANEL DISCUSSION AND Q&A

Sun. October 17th at 1:45pm – 3:45pm Jason Gotlib, MD, MS Mark Heaney, MD Deepti Radia Srdan Versovsek, MD

DAY 6 Monday, October 18, 10:00am-4:30pm ET

UPDATE ON HAT AND RELATIONSHIP TO MAST CELL DISEASE

10:00am – 10:25am / Jonathan Lyons, MD

MCAS AND EDS – HYPERMOBILITY SPECTRUM DISORDER

10:30am – 10:55am / Clair Francomano, MD

RELATIONSHIP BETWEEN MCAS AND DYSAUTONOMIA

11:00am – 11:25am / Brent Goodman, MD

BREAK 12:00PM-1:30PM

HYPERADRENERGIC POTS IN MCAS

11:30am – 11:55am / Cyndya Shibao, MD, MSCI, FAHA

HEREDITARY ALPHA TRYPTASEMIA

1:30pm – 1:55pm / Sarah Glover, DO, AGAF

BONE MARROW BIOPSIES IN PATIENTS WITH MCAS

3:00pm – 3:25pm / Olga Pozdnyakova, MD, PhD

SUPPORT GROUP – MEN’S*

7:00pm – 8:00pm / Leader: Jacob Hall

MCAS AND IMMUNODEFICIENCIES

3:30pm – 3:55pm / Anne Maitland, MD, PhD

MANAGEMENT OF MCAS AND ENDOCRINE DISORDERS

4:00pm – 4:25pm

DAY 7 Tuesday, October 19, 10:00am-6:00pm ET

CONTROLLING GASTROINTESTINAL SYMPTOMS IN MAST CELL DISEASE

10:00am – 10:25am / Matthew Hamilton, MD

TREATMENT FOR OSTEOPENIA AND OSTEOPOROSIS IN MASTOCYTOSIS & MCAS

10:25am – 10:55am / Giovanni Orsolini, MD

BREAK 12:00PM-1:00PM

LONG COVID

1:00pm – 1:25pm / Theoharis Theoharides, MD, PhD

SUPPORT GROUP – CAREGIVERS*

5:00pm – 6:00pm / Brian Hempstead

COVID-19 IN PATIENTS WITH MAST CELL DISEASE

11:30am – 11:55am / Mariana Castells, MD, PhD

AMERICAN INITIATIVES IN MAST CELL DISEASES (AIM) & TMS BOARD MEETING – CLOSED SESSION

2:00pm – 2:30pm

IDENTIFYING NOVEL TARGETS TO INHIBIT MAST CELLS

2:30pm- 2:55pm / Mark Siracusa, PhD

ADVANCES MAST CELL BIOLOGY THROUGH SINGLE- CELL RNA SEQUENCING

3:00pm- 3:25pm / Daniel Dwyer, PhD

INTRO TO CLINICAL TRIALS AND UPDATES IN MASTOCYTOSIS

3:30pm- 4:15pm / Lauren Denton, MA, Blueprint Medicines & Cogent

DAY 8 Wednesday, October 20, 9am-8:30pm ET

HOW MAST CELL MEDIATORS CAN CAUSE ANXIETY, DEPRESSION AND BRAIN FOG AND OPTIONS FOR TREATMENT

10:00am – 10:25am / Theoharis Theoharides, MD, PhD

DYNAMIC NEURAL RETRAINING SYSTEM (DNRS): AN EFFECTIVE TOOL TO TREAT MAST CELL ACTIVATION

10:30am – 10:55am / Judy Tsafrir, MD

BREAK 11:30AM-1:00PM

MANAGING NUTRITION WITH MAST CELL DISEASE

11:00am – 11:25am / Bonnie Nasar, RDN

HOW TO TALK TO YOUR PHYSICIAN

1:00pm – 1:25pm / Valerie Slee, RN, BSN

THE POWER OF PATIENT ADVOCACY

1:30pm – 1:55pm / Shannon von Feldon, EveryLife Foundation

ANAPHYLAXIS – WHEN AND HOW TO TREAT

2:00pm- 2:30pm / Julie Wang, MD

ANAPHYLAXIS Q&A

3:00pm- 4:00pm / Matt Giannetti, MD

APPLYING FOR SOCIAL SECURITY DISABILITY

4:00pm- 4:45pm / Elevate Disability

BLUEPRINT MEDICINES COMMITEMENT TO COMMUNITY

5:00pm- 5:25pm / Dave Dubinski & Paul Lim

BREAK 5:30PM-8:00PM

CLOSING CEREMONY

8:00pm – 8:30pm